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Carers left without proper help

NEW research shows unpaid carers were unable to get formal help with their physical and mental health during the Covid-19 lockdown.

This was at a time when 70% of carers had to provide more care for older, disabled or seriously ill relatives or friends, and millions more people took on an unpaid caring role.

The research, carried out by the Universities of Birmingham and Sheffield, in partnership with Carers UK, shows well over half (58%) of people caring for someone outside of their own home were unable to get through to NHS 111 services in April.

This compares to 33% of the general public.

Almost nine in ten carers saw their NHS treatments cancelled or postponed in April, compared to 77% of the general public. As it is difficult for many carers to find the time or get replacement care to receive treatment, many will still have unresolved health problems.

Previous research has shown that the pressure of lockdown has taken a huge toll on unpaid carers’ mental health, with many reporting feeling isolated, overwhelmed and worried about burning out.

Those with acute mental health needs have been unable to get help, with the latest findings showing that close to half (42%) of carers needing psychotherapist services were unable to access them in.

Half of carers needing formal care services could not get them in April, and only 40% could get help in May.

Helen Walker, Chief Executive of Carers UK, said:

“Some carers have had to cope for months without any outside support – seeing the health, wellbeing and mobility of the person they care for deteriorate, and their own physical and mental health heavily impacted as well.

“With a large number of support services still closed, carers are desperate for a break. It is imperative that these services are reopened as soon as possible and that local authorities undertake a rapid reassessment of carers’ needs.

“Likewise, the NHS must quickly identify carers and prioritise their needs and medical treatment. If their health breaks down, the cost will be catastrophic.

“Carers must not be left unaided should there be a second wave or future lockdowns. Their care is vital to supporting older and disabled people in our communities.”

Professor Sue Yeandle, head of the Sustainable Care programme at Sheffield University, said:

“Covid-19 has focused new attention on the importance of care. As this new report shows, some of the restrictions Government introduced in spring 2020 had troubling effects on carers. We hope the report will raise awareness of this situation so that, in any similar future scenario, carers can be protected from being unable to access crucial health and care services.”

In its Recovery Plan, Carers UK is calling for unpaid carers to be prioritised as part of the Government’s recovery planning. Specific recommendations include:

Systematic reviews and planning to ensure that those carers most at risk of poor wellbeing and burn out get support

Urgent reassessment of carers’ support needs by local authorities

Reinstatement of care and support services as soon as possible

Should another lockdown occur, carers to have priority access to the NHS 111 service and their planned medical treatment to be prioritised going forward

Sustained investment in carers’ mental health, wellbeing and ability to care

Carers’ voices and experiences put at the heart of building future recovery, locally and nationally.

As well as being unable to access services, at the height of lockdown carers felt more financially insecure, compared to the general public – especially women. 1.3 million carers said they were finding it very difficult to get by, quite difficult to get by or were just about getting by.

Surprisingly, working-age carers aged 31-45 felt the most financially insecure.

Given the extra costs of caring, and the impact caring has on people’s ability to work, Carers UK is calling for an immediate increase in Carer’s Allowance – the main benefit for carers looking after someone for 35 hours or more a week – currently just £67.25 a week.

Click here for practical advice and information about caring, or email

Click here for specific information to support carers during the coronavirus pandemic.

The Carers UK Forum is our online community of carers and is available to Carers UK members 24 hours a day, 365 days a year:

Helpline 0808 808 7777




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