A GRANDPARENTS’ Day is being set up to update nans and grandads of children with spina bifida and hyrocephalus about how they can best help their own children.
Maureen Jobson at he Association for Spina Bifida and Hydrocephalus, said:
“This is a rare chance for grandparents to learn more about spina bifida and hydrocephalus and we want as many as possible to join us for the day.
“Grandparents are an important part of every family but, when they are the grandparents of children with disabilities, they have an EXTRA role – to support their son or daughter who is the parent of a disabled child.”
The event takes pace at Peterborough United Football Club on Wednesday May 18.
Closing date for applications is Wednesday April 27.
Contact Maureen Jobson on 01733 421315 or email maureenj@asbah.org
Spina bifida fact file:
Spina Bifida occurs very early in pregnancy when the spine and brain are being formed. It is a fault in the development of the spine, which fails to close properly. Spina Bifida often results in paralysis below the fault resulting in severe disability.
A major secondary complication of Spina Bifida is Hydrocephalus – excess fluid pressure in the brain, which can cause brain damage if not treated promptly.
Hydrocephalus can also occur at any time of life, for other reasons, including meningitis, premature birth, stroke or tumours.
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